PKU Exchange
Home
Project Kuvan
A set of videos created by PKU patients who have been using Kuvan. They are recording their experiences with Kuvan in an attempt to provide an unbiased and honest insight into the effectiveness of the new PKU treatment.
A set of videos created by PKU patients who have been using Kuvan. They are recording their experiences with Kuvan in an attempt to provide an unbiased and honest insight into the effectiveness of the new PKU treatment.
Latest Headlines
Natural supplements may be in the works that could help people with phenylketonuria (PKU) live a better life.
Irish company Enzolve have developed a new, cheaper method of screening newborns for PKU. They hope to increase the percentage of newborns screened for PKU as currently only between 30-35% of babies are effectively screened.
Audio downloads of the recent "International Conference for Adults and Teens with PKU" are now available.
Kuvan, BioMarin's new PKU treatment, looks set to gain approval in Q4 2007, with the review date set for 25th November this year.
Health insurance companies in the USA have already admitted that they would have to meet the cost of Kuvan for PKU patients, as it is currently the only available treatment.